Luke had an appt. with a new neruologist yesterday. The most exciting thing was that he weighed 21lb. 12 oz, which is a big gain for him!! We are ecstatic! I asked the Dr. about Luke's sleeping and he suggested not letting him take a nap or just keeping it to 1 hr./day. He obviously doesn't have children. I didn't take him too seriously, I mean, he's so tired, he has to have enough energy for all his therapies. Anyways, took it with a grain of salt.
The doc also may want to run some genentic an metabolic tests on Luke due to the fact that we don't know what caused his CP. He seemed very puzzled that we didn't know. I don't think he suspects anything, just making sure he rules out anything else. The Poker Run is this weekend so we are excited about that, they should have a good turnout. Then next weekend it's home to Ohio to visit my family. It will be so nice to have a break from therapies and dr. appts!! Hope the car ride goes ok!
Wednesday, July 16, 2008
Saturday, July 12, 2008
Pretty good week
Well, Luke has had a pretty good week. We started putting him down for bed and naps awake and he's actually falling alseep on his own!! If only we could get him to sleep all night and for naps. His myoclonus still wakes him up. He is very inconsistent, waking up anywhere from 1-3 times at night. But, it's still an improvement over earlier days. We are going to see a new neurologist next week so I have a whole list of questions for him. Other good news, the Learning Center where Luke receives his therapy has lent us a chair until his comes in! It's not the prettiest, but it's nice to be able to put him in it and let him play instead of laying him on the floor....and Cody likes to push him around in it.
We took some really cute video of Cody and Luke in the pool the other day, Luke was just going crazy splashing, it was very hot that day and I imagine it felt pretty good to both of them. I'd post the video but the boys are naked! Maybe that's why it felt so good :)
Next week is the poker run fundraiser for Luke so we're looking forward to that. I also contacted a local TV station about doing a story about Luke and China. They sounded like they might be interested, but we'll see. It would be great coverage for all of our fundraisers!
We took some really cute video of Cody and Luke in the pool the other day, Luke was just going crazy splashing, it was very hot that day and I imagine it felt pretty good to both of them. I'd post the video but the boys are naked! Maybe that's why it felt so good :)
Next week is the poker run fundraiser for Luke so we're looking forward to that. I also contacted a local TV station about doing a story about Luke and China. They sounded like they might be interested, but we'll see. It would be great coverage for all of our fundraisers!
Sunday, July 6, 2008
Our Story
Luke was born March 8, 2007. The pregnancy was uncomplicated, as well as the birth. We had ourselves another beautiful little boy, in addition to big brother Cody, just 15 months old. We couldn’t be happier.
Around 4 months old, we noticed that Luke was very “stiff”. The pediatrician thought that maybe it was due to his acid reflux. A month later, Luke was still very stiff, his hands fisted constantly. He also wasn’t rolling over, or lifting his head up when on his belly. We saw another pediatrician who recommended a Physical Therapist examine him. We were told he had low muscle tone and would need physical and occupational therapy. A month later, we saw a neurologist and Luke received the diagnosis of Cerebral Palsy.
Luke is now nearly 16 months old and full of life and joy. He is a happy child who loves his family, swimming, reading books, and playing with his new puppy. He is quite the charmer with a smile to light up everything around him. He currently receives physical, occupational, speech, and aqua therapy.
Cody, now 2, is a very silly and happy boy. He loves to read and play with all his trucks and cars. Lastly, he absolutely adores his new puppy. He loves his little brother, but I think sometimes is still trying to figure him out!!
Family is everything to Clint and I, we will do all we can to give our children the best life possible. Please keep us in your thoughts and prayers
Around 4 months old, we noticed that Luke was very “stiff”. The pediatrician thought that maybe it was due to his acid reflux. A month later, Luke was still very stiff, his hands fisted constantly. He also wasn’t rolling over, or lifting his head up when on his belly. We saw another pediatrician who recommended a Physical Therapist examine him. We were told he had low muscle tone and would need physical and occupational therapy. A month later, we saw a neurologist and Luke received the diagnosis of Cerebral Palsy.
Luke is now nearly 16 months old and full of life and joy. He is a happy child who loves his family, swimming, reading books, and playing with his new puppy. He is quite the charmer with a smile to light up everything around him. He currently receives physical, occupational, speech, and aqua therapy.
Cody, now 2, is a very silly and happy boy. He loves to read and play with all his trucks and cars. Lastly, he absolutely adores his new puppy. He loves his little brother, but I think sometimes is still trying to figure him out!!
Family is everything to Clint and I, we will do all we can to give our children the best life possible. Please keep us in your thoughts and prayers
Here we go!!
Hi everyone, I decided to start blogging about our life and times with Cody and Luke. Other CP moms keep telling me what great therapy it will be for me. I also thought it would be a great way for all our friends and family to keep up to date with our challenging, crazy, but oh so blessed life. It is still work in progress, so keep checking back for more updates! I don't know how often I'll get to it, but I'll try my best!!
Hope you all enjoy. Take care
Cheryl
Hope you all enjoy. Take care
Cheryl
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