Sorry it's been a while, things have been very busy here. Between fundraising, vacations, and just everyday life it seems like the days and weeks just fly by. Clint's parents held a very successful Poker Run for Luke a few weeks back and along with dontations, we are one step closer to reaching our goal for Luke's China trip. Thank you soooo much to everyone who helped out and donated. We are so very grateful. Last week myself and the boys headed back to Ohio to visit with my parents. We all had a great time. We went to the county fair, the boys both loved the farm animals, and Cody especially liked the tractors and rides!! Luke even got to pet a horse, rabbit, cow and goat! We also went to the zoo and spent lots of time outide, which was nice because the weather was great, unlike the sauna like weather here!! UGGH, I hope it ends soon. It was so great to just enjoy the boys instead of worrying about running around to Dr. appts. and therapies. It was also nice just to have some extra hands to help out!! Thanks so much Mom and Dad!
This week was back to normal for us. Luke is again not sleeping well at night, which is very frustrating. We just don't know what to do anymore. None of us (except Cody, thank goodness) have had a full nights sleep in over a year!! That's just ridiculous! I just wish he could tell us what's wrong. We put him to bed one night and he got so mad he threw up, then last night, he was up 3 times, once for 45 min. before I went in there and got him to sleep because I couldn't take it anymore. I just wish he could figure out how to get himself to sleep. I'm so worried about when the babies come, how are we going to do it. I am just having a down day I guess, it happens... sorry. Then today we went for a checkup with his eye dr. and he tells me in 6 months they may want to start talking surgery for his eyes! It just really caught me off guard. It is a procedure that is pretty common for kids with CP, but it's just another thing. I HATE CEREBRAL PALSY!!! I hate the thought of Luke being uncomfortable, I just wish he didn't have to go through all this. It makes me so sad sometimes. Please understand, I know how blessed we are to have Luke and realize he could be much worse, it's just a struggle some days to deal with it all. The boys are both sleeping now, so I should try and rest myself, here's hoping tomorrow is a better day.
Wednesday, August 6, 2008
Wednesday, July 16, 2008
Luke's Appt.
Luke had an appt. with a new neruologist yesterday. The most exciting thing was that he weighed 21lb. 12 oz, which is a big gain for him!! We are ecstatic! I asked the Dr. about Luke's sleeping and he suggested not letting him take a nap or just keeping it to 1 hr./day. He obviously doesn't have children. I didn't take him too seriously, I mean, he's so tired, he has to have enough energy for all his therapies. Anyways, took it with a grain of salt.
The doc also may want to run some genentic an metabolic tests on Luke due to the fact that we don't know what caused his CP. He seemed very puzzled that we didn't know. I don't think he suspects anything, just making sure he rules out anything else. The Poker Run is this weekend so we are excited about that, they should have a good turnout. Then next weekend it's home to Ohio to visit my family. It will be so nice to have a break from therapies and dr. appts!! Hope the car ride goes ok!
The doc also may want to run some genentic an metabolic tests on Luke due to the fact that we don't know what caused his CP. He seemed very puzzled that we didn't know. I don't think he suspects anything, just making sure he rules out anything else. The Poker Run is this weekend so we are excited about that, they should have a good turnout. Then next weekend it's home to Ohio to visit my family. It will be so nice to have a break from therapies and dr. appts!! Hope the car ride goes ok!
Saturday, July 12, 2008
Pretty good week
Well, Luke has had a pretty good week. We started putting him down for bed and naps awake and he's actually falling alseep on his own!! If only we could get him to sleep all night and for naps. His myoclonus still wakes him up. He is very inconsistent, waking up anywhere from 1-3 times at night. But, it's still an improvement over earlier days. We are going to see a new neurologist next week so I have a whole list of questions for him. Other good news, the Learning Center where Luke receives his therapy has lent us a chair until his comes in! It's not the prettiest, but it's nice to be able to put him in it and let him play instead of laying him on the floor....and Cody likes to push him around in it.
We took some really cute video of Cody and Luke in the pool the other day, Luke was just going crazy splashing, it was very hot that day and I imagine it felt pretty good to both of them. I'd post the video but the boys are naked! Maybe that's why it felt so good :)
Next week is the poker run fundraiser for Luke so we're looking forward to that. I also contacted a local TV station about doing a story about Luke and China. They sounded like they might be interested, but we'll see. It would be great coverage for all of our fundraisers!
We took some really cute video of Cody and Luke in the pool the other day, Luke was just going crazy splashing, it was very hot that day and I imagine it felt pretty good to both of them. I'd post the video but the boys are naked! Maybe that's why it felt so good :)
Next week is the poker run fundraiser for Luke so we're looking forward to that. I also contacted a local TV station about doing a story about Luke and China. They sounded like they might be interested, but we'll see. It would be great coverage for all of our fundraisers!
Sunday, July 6, 2008
Our Story
Luke was born March 8, 2007. The pregnancy was uncomplicated, as well as the birth. We had ourselves another beautiful little boy, in addition to big brother Cody, just 15 months old. We couldn’t be happier.
Around 4 months old, we noticed that Luke was very “stiff”. The pediatrician thought that maybe it was due to his acid reflux. A month later, Luke was still very stiff, his hands fisted constantly. He also wasn’t rolling over, or lifting his head up when on his belly. We saw another pediatrician who recommended a Physical Therapist examine him. We were told he had low muscle tone and would need physical and occupational therapy. A month later, we saw a neurologist and Luke received the diagnosis of Cerebral Palsy.
Luke is now nearly 16 months old and full of life and joy. He is a happy child who loves his family, swimming, reading books, and playing with his new puppy. He is quite the charmer with a smile to light up everything around him. He currently receives physical, occupational, speech, and aqua therapy.
Cody, now 2, is a very silly and happy boy. He loves to read and play with all his trucks and cars. Lastly, he absolutely adores his new puppy. He loves his little brother, but I think sometimes is still trying to figure him out!!
Family is everything to Clint and I, we will do all we can to give our children the best life possible. Please keep us in your thoughts and prayers
Around 4 months old, we noticed that Luke was very “stiff”. The pediatrician thought that maybe it was due to his acid reflux. A month later, Luke was still very stiff, his hands fisted constantly. He also wasn’t rolling over, or lifting his head up when on his belly. We saw another pediatrician who recommended a Physical Therapist examine him. We were told he had low muscle tone and would need physical and occupational therapy. A month later, we saw a neurologist and Luke received the diagnosis of Cerebral Palsy.
Luke is now nearly 16 months old and full of life and joy. He is a happy child who loves his family, swimming, reading books, and playing with his new puppy. He is quite the charmer with a smile to light up everything around him. He currently receives physical, occupational, speech, and aqua therapy.
Cody, now 2, is a very silly and happy boy. He loves to read and play with all his trucks and cars. Lastly, he absolutely adores his new puppy. He loves his little brother, but I think sometimes is still trying to figure him out!!
Family is everything to Clint and I, we will do all we can to give our children the best life possible. Please keep us in your thoughts and prayers
Here we go!!
Hi everyone, I decided to start blogging about our life and times with Cody and Luke. Other CP moms keep telling me what great therapy it will be for me. I also thought it would be a great way for all our friends and family to keep up to date with our challenging, crazy, but oh so blessed life. It is still work in progress, so keep checking back for more updates! I don't know how often I'll get to it, but I'll try my best!!
Hope you all enjoy. Take care
Cheryl
Hope you all enjoy. Take care
Cheryl
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